“You have to look after yourself”

Hackney elders continue their conversation about social isolation – drawing particularly on the experiences of older carers.

When speakers refer to ‘here’ or ‘this place’, they mean the Wednesday morning drop-in and the Friday afternoon podcast.

The voices belong to service users and volunteers at the Hackney 50+ Drop-in: Anita, Irene, Mimi, Rick, Sallie, Zena.

Recorded 16 February 2018. 26 minutes

“Isolation kills people”

This podcast episode joins a conversation that was already in full flow. We were talking about the Wednesday morning IT drop-in at Whitmore Community Centre, and how it functions as a social inclusion project. The episode title (‘Isolation kills people’) should perhaps be expanded to ‘The drop-in project tries to rescue people from the isolation that might otherwise kill them’.

When speakers refer to ‘here’ or ‘this place’, they mean the Wednesday morning drop-in.

The voices belong to service users and volunteers at the Hackney 50+ Drop-in: Irene, Liz, Rick, Sarah.

Recorded 9 February 2018. 22 minutes.

Dementia Music Player Launched

Dementia Player 2

I have written an app for playing Music for dementia users.
It is now on Google Play, for Android mobiles called Dementia Player.
Dementia Player.1 is for older android mobiles and tablets. https://play.google.com/store/apps/details?id=com.thunkable.android.adams1stephen.DemPlayer1

Dementia Player.2 is for the ones with Kitkat (4.4) operating system or later. https://play.google.com/store/apps/details?id=com.thunkable.android.adams1stephen.DementiaPlayer2

Explanation is on the web site.

Once set up, dementia users can press a flashing coloured square and get one of 9 songs, of their choice.
It is free to use, asking people if they like it to donate to the Alzheimer’s Society UK.

Beating social isolation in Hackney

Our theme is social isolation amongst older people – and our starting point is the proposition that the best way to understand social isolation it is to talk to older people who have direct experience of it in their own lives or the lives of their friends – and the best way to combat social isolation is to follow the lead of the experts – older people who deal with it as part of their everyday lives.

The voices belong to Charlie, Liz, Mimi, Rick, Theresa B.

Recorded 26 January 2018. 42 minutes.

Links to places mentioned

AcTo Dementia — Accessible Touchscreen Apps for Dementia

Supports people to find and use dementia-friendly touchscreen apps

AcTo Dementia provides recommendations and guidance on accessible touchscreen apps for people living with dementia. This website is an ideal resource for anyone with a diagnosis of dementia, or anyone looking to support a person with a diagnosis, to find and use apps on a tablet computer for entertainment. We are a group of university researchers unaffiliated with any app developers and all of our recommendations have been through an evidence-based review process.

Visit AcTo Dementia

Results of the Hackney Icare Website users Survey

6 People in the Dropin Centre visited the site http://www.hackneyicare.org.uk  which is provided by the London Borough of Hackney for Carers.

The results were sent to Hackney Hackney Adult Social Care who run the site, but we have not had anything but an automated reply yet.

Answers for questions 1-6 on 6th December 2017 at Drop-in Centre for 50+’s
1. Did you try out the site?
5 out of 6 people tried the site.
Only one comment:
“It was very infrmative requarding current events. Please send me your feedback.”
“Yes, simple to use.”
2. Did you find it easy to use?
“Of course I find it was very easy to use, and I’ll continue to use it mre frequently.”
“Only with a little help from experts Rick and Michael.”
“Yes,Quite.”
“Yes”
3. What was useful to know from the site?
“Medical Centrs Abney Park Trust,Access to various Projects etc.”
“Things to do, places to go in Hackney that I need to know.”
“The things to do section is useful in its relevancy.”
“You can adjust the text size and other accessability factors on the site.”
4. What was missing?
“Really not much as a carer. I’m interested seeing Residential Care Home and much more.”
Address of places, but there was a phone number to get contact.”
“I drew a blank on askinging about digital photography or photoshops courses.”
“Any News articles, there are only two listed, the last on is 18th January 2017!”
5. Was it up to date?
“Yes, it was very much up to date reguardng Current events.”
“Some of them.”
“Seemed so – Hard to Say. 4 Corners Website – Gallery and Events wasn’t”
“Policies and procedures are out of date, last annual report is from 2015-16.”
“Under things to do, FAQ it quotes “Median Road Care Home Sam and Annie Cohen Day Care Centre”, these have not existed since 2013!”
6. Would you use it again?
“Yes I would continue to use it again due to the interesting information given the general public.”
“Sure”
”probably not the cost of the website could be better spent elsewhere.”
“I try to recommend it as the place to go for carers, but it needs to be more up to date.”

Are you a carer?

Do you help …

… a family member, partner, friend or a neighbour with any of the following because they can’t manage on their own?

Do you …

  • Take them to appointments or collect their prescriptions?
  • Cook for them or help them to shop?
  • Keep them company or phone them during the day to check that they are ok?
  • Help them to wash or dress?
  • Help them get up in the morning or go to bed at night?
  • Help them with their housework or laundry?
  • Remind them to take their medication?
  • Help them to fill in forms such as benefit applications?

If you do any of the above …

… you are probably a carer and could get support and services from Carers Are The Bedrock such as –

  • Carers needs assessments
  • Benefits advice advocacy
  • Support groups
  • Counselling & coaching
  • Training and workshops
  • Social activities
  • Befriending and volunteering

To find out more …

  • Call the Carers Coordination Service on 020 8533 0951
  • Open hours: Monday to Friday, 9:30 am to 4:30 pm

Carers’ one off payments

“Carers are the bedrock” is the official slogan but should be changed to Carers are a pain in the neck as, from my experience, the system operators appear to be treating all Carers with a total disregard.

Since applying for an allowance in May this year, now five months later I am still waiting. If carers are entitled to an annual allowance,why should they have to be begging for it. Let’s all be grownups and act responsibly with dignity and respect to each other and send me the money.